Parents of Jemima Layzell, who died unexpectedly of a brain aneurysm, want families to Think about organ donation
A 13-year-old girl who died unexpectedly of a brain aneurysm has had her organs transplanted to eight people – the biggest number in the history of the organ donation support.
Jemima Layzell was “lovely — clever, humorous, compassionate and innovative”, ” said her mom, Sophy Layzell, 43, a drama instructor in Horton in Somerset. As a family friend had died in a car accident, a few weeks before her collapse in March 2012, the household had a conversation about organ donation.
“They were on the register but their organs could not be contributed on account of the conditions of their death,” said Sophy. “Jemima hadn’t ever heard of organ donation before and found it a little bit unsettling, but completely comprehended the value of it.”
Her parents found the decision difficult, but are glad they made it. Jemima’s heart and pancreas were transplanted into three people. Two people received her kidneys. While her lungs were thrown into one patient, her liver transplanted and had been split into another two people.
The eight recipients included.
Jemima collapsed throughout the preparations for the 38th birthday party of her mother and died in hospital. A brain aneurysm is a in an artery wall unless it ruptures and there are no symptoms. It causes a haemorrhage in the mind that may kill or cause lasting damage when it bursts.
Her parents prepare the Jemima Layzell Trust in her memory to assist survivors. “If Jemima had endured, the ruptured aneurysm could have seriously affected her communicating and the right side of her body,” they say on the trust website.
Her parents moved through possessions and clothes, searching for clues as to why she had died young. They didn’t find them, but they did discover about 20 diaries and notebooks since she was four years old that she had been keeping. These they have turned into a book, known as the Draft.
They tell the story of her brief life.
Saturday 9 July 2011
It’s times like this when I sit and wonder ‘where’s my Romeo? What happened for my Prince Charming?’ But then I think and stop, do I deserve him?
… I need to jump from bed, draw back the curtains and gaze out into the evening.
To lean out the window, sing for my true love, the love I don’t yet
have and possibly never will. If only I were not so fearful.
Monday 8 August 2011
Many people today say that God can’t exist because if he did he’d help all the bad folks in the world.
I object to that. I feel their grief but WE have to aid them. They
are there since we did this to them. They are there because we have a
wrong to correct. They are there to prevent us from turning into complete
monsters before it is too late.
1 infusion even foretells the future:
Sunday 7 August 2011
Anyhow I want to write what I feel and think. Not all that you see
here actually ‘happened’ but it is still very real to me. I don’t care when
I let my imagination run away with me!
Plenty of amazing artists and artists were mad! Actually it made their work more interesting! Even when they did cut their ears off, commit suicide, then run around doing crazy stuff etc etc.. People still loved them and their work just the same. And that I want to be loved too. I almost feel as if I won’t ever live long enough to become an author, to be married and have a family.
Her mom, her father, Harvey, 49, the director of a building firm, along with her sister, Amelia, aged 17, conducted the Jemima Layzell Trust, which also promotes organ donation. They are proud that the organs of Jemima assisted eight lives persist.
“Soon after Jemima expired, we saw a programme of children awaiting heart disease and being fitted with Berlin Hearts in Great Ormond Street hospital,” explained her mum. “It affirmed for us that saying ‘no’ could have been denying eight additional people the chance for life, particularly within Jemima’s heart, which Harvey had felt uncomfortable about donating at the time.
“We believe it is very important for families to discuss organ donation. Every parent’s instinct would be to say no, as we’re programmed to protect our kid. It is only with prior knowledge of Jemima’s arrangement that we were able to say yes.”
NHS Blood and Transplant is hoping Jemima’s narrative will encourage more households to have the crucial conversation, as a shortage of donated organs is costing hundreds of lives every year, it states.
457 people died awaiting a transplant, including 14 children, this past year. You will find 6,414 people on the transplant list for example 176 children.
Anthony Clarkson, of NHS Blood and Transplant, said: “Every donor is unique and Jemima’s unique narrative indicates the extraordinary difference a few words can create. Hundreds of people are dying because many households say awaiting a transplant.
“Please tell your family that you need to contribute, and if you’re unsure, ask yourself; if you wanted a transplant could you accept one? If so, shouldn’t you be prepared to donate?”
To join the NHS organ donor register visit organdonation.nhs.uk or contact the 24-hour donor lineup on 0300 123 23 23.
Read more: http://www.theguardian.com/us